Official Title
SUNLIGHT Study: Online Support Groups for Multiple Sclerosis (MS) to Address COVID-19
Brief Summary

Stress and anxiety can have an adverse impact on health, and the experience of many around the 2020 outbreak of COVID-19 is affecting health and well-being. Individuals with chronic disease such as multiple sclerosis may be particularly vulnerable in some ways, but also particularly resilient in others. This study evaluates the effects of belonging to online support groups that meet weekly for 12 weeks to address the stress and anxiety felt by individuals with Multiple Sclerosis (MS). This study will also measure and explore the effects of online support groups.

Detailed Description

Anxiety is a pervasive and debilitating symptom for individuals with MS, who are at much greater risk for anxiety than the general population. The lifetime prevalence of anxiety in MS is estimated at 48.9%, compared to 37.9% in the general population. The negative consequences of anxiety for individuals with MS include impairment of work function and workplace attrition, increased healthcare usage and healthcare costs, increased physical disability (i.e., higher Expanded Disability Status Scale (EDSS) score), and reduced overall quality of life. And while anxiety has been shown to be acutely elevated both before and in the first years after diagnosis, individuals with longstanding MS also exhibit anxiety at higher rates than the general population. Of note, women are at heightened risk for both anxiety and MS, and lower socioeconomic status (SES) is associated with increased prevalence of anxiety in MS. In the SUNLIGHT study, participants join a structured meeting in which they receive content specifically focused on anxiety, its detrimental impact on individuals with MS, and an emphasis on techniques to reduce anxiety. Over the 12-week period of the intervention, participants learn techniques for stress reduction that can be self-administered, such that the benefits of participation outlive the active period of the intervention.

Recruiting
MS (Multiple Sclerosis)
COVID-19
Support Groups

Behavioral: Online support Group
12 one-hour, once-weekly online support groups for people with Multiple Sclerosis to address anxiety related to the COVID-19 outbreak and its effects on them.
Online support group

Eligibility Criteria

Inclusion Criteria:

- MS Diagnosis

- 18 years or older

Exclusion Criteria:

- None

Eligibility Gender
All
Eligibility Age
Minimum: 18 Years
Countries
United States
Locations

Columbia University Medical Center
New York, New York, 10032

Recruiting

Investigator: Ines Aguerre
Contact: 212-305-1485
ima2122@cumc.columbia.edu

Contacts

Victoria Leavitt, PhD
212-342-1969
vl2337@cumc.columbia.edu

Ines Aguerre
212-305-1485
ima2122@cumc.columbia.edu

Victoria Leavitt, PhD
Principal Investigator
Columbia University

Columbia University
NCT Number
MeSH Terms
Multiple Sclerosis
Sclerosis