Document and evaluate the impact of societal restrictions due to the pandemic on SCI- and ABI-related disability and functional impairments, and the resultant effects on psychological wellbeing, physical wellbeing and quality of life for those with SCI/ABI.
The investigators will conduct a longitudinal survey to examine the impact of COVID19 on
those with SCI and ABI. An a priori sample size of 117 individuals based on an alpha level of
.05 and level of acceptable error at 3% was calculated. Anticipating for loss to follow up
rate of up to 20%, a total of 142 participants will be recruited. Patients will be recruited
among those who attend virtual medical appointments at Parkwood Institute for ABI and SCI. We
will also liaise with SCI-Ontario and the Ontario Brain Injury Association to assist in the
recruitment of additional participants. Those who consent will complete an online survey on
enrollment into the study, and subsequently at 3 and 6 months. Demographic data of the
individuals participating in the study will be recorded. Participants' access to health care
services will be evaluated using the following subdomains: medical care, complementary care,
medications/equipment, satisfaction/acceptability, affordability, ability to engage, and
indirect support.
Inclusion Criteria:
- stroke, spinal cord injury (traumatic and non-traumatic) or acquired brain injury (of
all severities, including concussion)
- live in the community
- have the cognitive capacity to understand and complete the measures
Exclusion Criteria:
- does not have the cognitive capacity to understand and complete the measures
- does not speak English
Lawson Health Research Institute
London, Ontario, Canada
Eldon Loh, MD, Principal Investigator
St. Joseph's Health Care London