The study investigates how the COVID-19 pandemic has impacted the psychological, financial, physical, and social well-being of adolescent and young adult (AYA) cancer patients and survivors. AYA cancer survivors have inferior long-term survival compared to the general population, and the negative impact of the global COVID-19 pandemic may be even higher in this vulnerable group. The information gained from this study may provide an opportunity to determine the self-reported COVID-19 specific psychological distress in AYA cancer survivors, and may lead to the development of a targeted intervention to improve physical and psychosocial health for AYA cancer patients and survivors.
PRIMARY OBJECTIVE:
I. To determine the self-reported coronavirus disease 2019 (COVID-19) specific psychological
distress in adolescent and young adult (AYA) cancer survivors diagnosed between the ages of
15 to 39 and are currently between the ages of 18 to 39.
SECONDARY OBJECTIVES:
I. To determine the COVID-19 specific health care utilization, health behavior, financial and
social disruptions, and health-related quality of life (HRQoL).
II. To determine associations between patient demographic and treatment-related variables
with COVID-19 specific psychological distress, healthcare utilization, health behavior,
financial and social disruptions, and HRQoL.
III. To determine associations between resilience factors (i.e., social support, perceived
benefits under times of stress, and the ability to manage stress) with self-reported COVID-19
specific psychological distress, healthcare utilization, health behavior, financial and
social disruptions, and HRQoL.
IV. To determine the changes in COVID-19 specific psychosocial distress, healthcare
utilization, health behavior, financial, and social disruptions.
OUTLINE:
Patients and survivors complete a survey online over 20-30 minutes at baseline about COVID-19
specific psychological distress, health care utilization, health behavior, social and
financial disruptions, HRQoL, their social support, perceived benefits under times of stress,
and the ability to manage stress. Patients and survivors may be contacted again at 6 months
and 1 year for COVID-19 research.
Other: Quality-of-Life Assessment
Ancillary studies
Other Name: Quality of Life Assessment
Other: Survey Administration
Complete survey
Inclusion Criteria:
- PATIENT COHORT INCLUSION:
- Initial cancer diagnosis between the ages of 15 to 39
- Received any cancer treatment at MD Anderson Cancer Center with data available in the
MD Anderson Cancer Center Tumor Registry
- For questionnaire provision: confirmed alive at time of contact
Exclusion Criteria:
- PATIENT COHORT EXCLUSION:
- Inability to complete questionnaires in English
- Seen at MD Anderson for a second opinion or non-treatment related visit
M D Anderson Cancer Center
Houston, Texas, United States
Investigator: Maria Swartz
Contact: 713-745-3763
MChang1@mdanderson.org
Investigator: Maria Swartz
Maria Swartz
713-745-3763
MChang1@mdanderson.org
Maria Swartz, Principal Investigator
M.D. Anderson Cancer Center